LIVED EXPERIENCES OF SELECTED PARENTS IN SELECTED MUNICIPALITIES OF NUEVA ECIJA WITH CHILDREN DIAGNOSED WITH AUTISM

Abstract

Managing a child with autism presents significant challenges due to its complex neurodevelopmental nature, which affects social skills, communication, and behavior. Parents of children with Autism Spectrum Condition (ASC) employ various strategies to support their children, yet they often face obstacles such as limited social support, which can increase parental stress and affect family dynamics. This study aimed to explore the lived experiences of parents whose children are diagnosed with ASC and to examine the efforts they undertake to cope with these challenges. This study utilized snowball and judgmental sampling techniques to select participants. Semi-structured interviews were conducted with ten (10) parents from selected municipalities in District IV of Nueva Ecija through both in-person and online modalities. Thematic analysis was employed to identify predominant themes while ensuring the confidentiality and anonymity of the participants. The thematic analysis revealed significant themes highlighting the profound impact of ASC on families. Mothers primarily assumed caregiving roles, while fathers provided support. Common challenges included stress, managing tantrums, exhaustion, societal judgment, and difficulties with time management. Despite these challenges, themes of acceptance, strong familial bonds, and treating the child as a typical family member emerged. Coping mechanisms such as allocating personal time and maintaining faith in God were identified, along with additional efforts made by parents to address their child’s needs. This study highlights the complex challenges faced by parents managing children with ASC in District IV of Nueva Ecija. Despite the difficulties encountered, resilience, acceptance, and family unity were evident among participants. The findings emphasize the importance of greater understanding and support, including accessible interventions, respite care, and mental health services. Increasing awareness and promoting acceptance may help reduce stigma and foster more inclusive environments. Recognizing both the challenges and strengths of these families is essential in building a supportive society where individuals with autism and their families can thrive.